Community stories
Real experiences from people affected by Alpha-1.
- From unexplained COPD to an Alpha-1 answer
A family story about early emphysema, genetic testing for COPD, and finding community after an AATD diagnosis.
- A caregiver's view: asking relatives about Alpha-1 testing
After one AATD diagnosis, a caregiver navigates cascade testing conversations, appointments, and hope for research.
- Living with Alpha-1: finding steady ground
A patient journey story about daily life with Alpha-1 Antitrypsin Deficiency, community support, and hope for research.
- Finding community after an Alpha-1 diagnosis
How peer support groups helped one family navigate a new diagnosis.
- Alpha1 360: a full circle of support
MEF launches Alpha1 360 to connect education, peer support, and practical resources.
- Uniting Doctors network welcomes new specialists
The physician network connects Alpha-1 aware clinicians across the Midwest.